Day + 1 Jet and Pinkie’s Escapades

I have to clear my head, but wanted to send out a photo of our reunion.  More information and photos to come.  I had my big surgery this morning.  Took all of 20 minutes!  I have one big A_ _ bandage on my chest.  Looks like I had heart surgery! I am soooo glad I didn’t have this done before the reunion…it would have shot my whole “hot girls” look.  Sooooo, here’s our “Hot Girls” photo!

Jet and Pinkie Laughing

Day + 76 and Still Counting

Sorry for the delay.  Our visit last Wednesday was really great.  I just had to do a lot of coordinating with other healthcare stuff, doctors, pharmacies, and JHH.  A lot to do…also had to get myself together for “The Reunion”.

The long and the short of it…Dr B at JHH was really pleased with Zip’s bone marrow biopsy and with Zip’s physical body and appearance and attitude.  He kept us there for at least 45 minutes, just “shooting the breeze”.  He had just been to Assateague last weekend with his family and several other families, camping out.  They loved it and his 12 and 13-year-old thought it was amazing.  Welcome to our world! (We sometimes don’t appreciate what we have in our own backyard, we forget why we came down here)

So, Zip doesn’t have to go back until January, which will be 6 months.  Then he’ll get all the tests again and they will start his immunization program.  But, from now until then, he’ll go back to Dr Ngaiza to monitor him.  He’ll be taking a pill a day, which gave me great angst, since I have to get it from CVS Specialty up in Monroevile PA.  They gave me such a hard time (if you remember) the first time I had to deal with them.  This time, not so much, but they did send it to Abingdon Md CVS, not to CVS in WOC.  We’re still waiting for it to arrive at our home CVS.  I’ll also will be giving Zip a shot of Lovenox everyday.  They think that’s better than Xeralto pill.  If that’s what I have to do, OK.

On to more important things.  “The Reunion”.  So, I have a dress, I love and I haven’t picked out my outfit for Happy Hour on Friday.  Since it’s casual, at a Sports Bar, I think I can find something in my closet.  The dress, I love, but I think I was too prideful.  I loved the neckline, since it laid really well on my collarbones…very prideful.  I took to back to CrazyLadyz to find a piece of jewelry.  While there, another woman saw what I was wearing and wanted to try one on.  There were no other ones in the store, so they asked if I would let her try it on.  I said sure. She tried it on and it didn’t fit on her like it fit on me.  It didn’t  sit on her neck like it did on me. She was a lot larger than me, in the boobs.  I thought to myself, prideful me, I look so much better than she does in the dress.  She still wanted one and they ordered her one.  Never thought about it again, until I tried it on yesterday. I never found a necklace that worked, so at home tried on some of my jewelry to see what would look good with it.  When I tried it on, I couldn’t get the neckline to sit right and BOOM, it came to me.  She had stretched it out, since she had big boobs.  I thought of taking it back, but then I thought that’s too, too prideful.  So, humbling me, will wear it and know I still look good in it, but, also know there is something to keep me in my place.  It made me think…does it matter that I look hot at my reunion?  Why do  care about it?  Isn’t it enough to know that I love my life here with Zippy and Jen and all my friends.  That I have an awesome life, I think.  Yes, we have some roadblocks and struggles that are ongoing, but doesn’t everyone else.  Would you  trade your life with others.  I would not. So, I went in my closet, and found my old golf clothes and shoes, my old golf bag, my old Happy Hour clothes and I will wear my new dress and be proud.  I’ll let you know how it goes…the prideful me still thinks that Sandie and I will be at the top of the list of hot girls.

Here’s to Zippy and me being upright and golfing and Sandie and I dancing at the reunion.

Day + 67…Getting Ready

Tomorrow, we go back up to JHH and hope that all the lab work that Zip got on Sept 11th will come back looking good and that the Bone Marrow Biopsy shows us good news.

Zippy started with scratchy throat and coughing and a teeny temp on Day + 61.  Scared us both!  It got worse, was going to go to Rider on Monday, but then it all got better.  Using Claritin and tylenol.  So, now, no temp, no scratchy throat, no coughing and hopefully no pneumonia brewing.  We’ll see tomorrow.

On to me…Dr Giles, my eye doc, says I have great eyes.  Redness and dry eye due to allergies or sensitivity to preservatives in eye drops.  Something for all of us to consider.  I’m trying to stay away from stuff that is not “natural” to us.  I may not succeed, but I’m going to try. I have 20/20, still need readers.  Inside and behind my eyes are OK.  Yeah for me!

Saw Dr Davis yesterday also.  What a good doc!  Having surgery on my spot on my upper, upper chest.  Receptionist wanted to set up in September (it’s all about me) and I asked about “My 50th Reunion” She asked when and said Oct 6th and I heard from the back room, a voice saying “Set it up for afterwards”  Bless that man! So, no band-aids are needed. But, they set it up for Oct 9th 7:30 AM after my reunion week end.  Can I do it?  Yes I can!

So, here’s to an upright walking, no golfing (allergies) Zippy getting a great report tomorrow after his visit to Dr Borello.

Day + 60 and Counting Again

We left the house at 4:00 AM yesterday (you know we had to get up pretty early) to go up to JHH for lab work and a bone marrow biopsy.  Not a lot of excitement, just preliminary stuff before we see Dr Borello next week.  I’m hoping Zip has good numbers.  He still have no immune system…I don’t think he gets that all the time.  He’s out there playing golf, taking out trash, cleaning floors, just getting back to the old Zip I knew and loved.  Love him more, now that he’s doing odds and ends in the house.  He’s eating lots of stuff and some not so good, but he’s trying.

So, now it’s all about me.  I’m getting ready for my 50th Class Reunion and had my hair done.  It’s looking better each day…the roots are calming down the overall blondie look.  Got my dress and I love it.  Very black and very bohemian. Zip loves it.  Signed up to golf at Catonsville Country Club with other classmates…yeah.  Just have to get a pedicure and hair cut and car washed.

Here’s my problem…I have had this annoying spot, pimple, bump, whatever you want to call it.  It started out, at least a year or more ago and was tiny and prickly.  Dermatologist didn’t know what it was, so, he gave me prescription for a topical cream.  It went away.  Right before Zip and I went up to Hopkins in June, it came back.  I put the cream on, but no luck.  I didn’t have time to think about it.  It was prickly and kept growing.  It hurt, since it was right in the seatbelt path.  Two weeks ago, I went to the Dermatologist.  He looked at it, scraped it and biopsied it.  Now I have a band aid on it, because it’s still irritating and itchy and whatever.  Turns out it is a squamous cell cancer and it’s got to be excised, not scraped out and I don’t think I want him to do it.  I called and made an appointment with Dr Davis, even though Dermatologist was not happy with my decision (nurse was telling why I shouldn’t do that) But the biggest concern – what do I do for my cool black dress?  Do I wait until after the reunion?  I guess Dr Davis will tell me that answer.  Do I put a band aid on it?  Do I put a skull and crossbones round band aid that the grandkids have, on it.  Do I ignore it and just leave it out there for all to see?  Don’t know.  I’m leaning towards a wonder woman band aid, if I can find them or something like that.  I don’t know.  Your thoughts?

So, Zippy is upright and golfing and doing chores around the house, since he knows it’s all about me these days.

Day + 41 + Zip is Upright & Golfin’

Not too much to say about us.  Lots going on, but Zip is really, upright and golfing.  He went out today for the first time.  He played the whole 9 holes and thinks he did OK for his first day out.  He feels good, he’s looking good with his “shaved head look” and he is eating…yeah.  I can tell, the old Zip is coming back.  He loves being with the guys, since he is a guy’s guy. He likes to listen to them treating him as if he’s just a guy. He likes to hear them giving him a hard time. It’s a guy thing.

We go back 9/11 for a bone marrow biopsy.  Then we go back on 9/20 for the results and office visit with Dr Borello.

I’m trying to get back in the groove. I’m having a hard time getting back to normal.  I did get my toes painted at Serenity (thanks Ginny for the place) and I love them.  I did go to Tammy and get my hair colored (don’t freak when you see me) and it’s still a little too much.  I have my 50th Class Reunion on October 6th, so, I have to have the perfect color by then…you know, just enough dark roots to give me, my look. I did get my estimate for repairs on doors.  I did get an appt for Verizon to come in and check on my line for internet. I am still working on ants. I did take Jen to the neurologist, which was the most frustrating visit I have ever encountered….another story for another time. I did take Jen and Bailey (her Yorkie) to the Vet’s to be spade 8 AM this morning. We did go to breakfast at the diner on Rt611 (good breakfast).  We did go to White Marlin and yes, HomeGoods is coming Soon. We did go to the boardwalk, beautiful day to do that and we did get Thrashers and an orange swirl ice cream cone. Too, too much to eat for us today. And I did pick up Bailey at 2:30 PM. I haven’t had a day like today in a long, long time.  I was exhausted when I got home today.

So here’s to Zippy being upright, eating and golfing and to me getting back to normal, or as normal I can be.

 

Day + 38 + Catch Up + Power Wash ?

I think we are trying to get back to normal, or as normal as we can get.  I have to back track to last week’s visit to JHH.  Day + 33 we went up to Dr Borello, the director of this whole procedure.  He was happy with Zip’s progress, and gave him a thumb’s up on his numbers.  They aren’t completely back to normal, but going in the right direction.  He told him to keep the weight off (he’s lost about 30 lbs) and to walk and be as active as he can at this point.  Zip is worried about his fatigue, but Dr Borello told him that he’s lucky to be upright and walking (my slant on his version).  We go back to JHH for a bone marrow biopsy in the next month or so, to see how he’s doing.

Sooo…in keeping with Zip’s history of non compliance, he decided to get a Celebratory Italian Cold Cut Sub at Harris Teeter…hmmm. You know where this is going, don’t you?  Right…his stomach did not like his celebration.  Yup…we’re back to bland and boring food.  I’m thinking he “get’s it” this time, maybe not. We are now 5 days into the bland diet and he’s doing OK.

I’m trying to get the house back to order, which is tough, since I haven’t done a thing all summer. Fixing plants, fixing  the pond, weed wacking, straightening up at Jen’s house, baking, fixing computer problems, paying bills, you know, all the things that have to be done to not let your house or lives fall off the earth.  My brother is here to fix my icemaker, spray for ants (wow, did I have a huge ant attack), check on a new router for the house, check on doors and overall, check on Zip and me.  So, my question to all of you…who do you use to power wash your house down here?  Inquiring minds want to know! I think you can answer here on this site.  At least some of you do.

Here’s to Zippy being upright, walking, and off, all by himself getting his car washed.

Day + 36 +

I’m not sure where to start, so, I’ll go back to The Good, the Bad and the Ugly.  I guess the funeral blew me out of the water.  I’ve lost sleep over the family and I’m going to say some short things and as usual, get on with my life. I believe that every family has some good in them, if not a lot of good.  Mine, has a lot of good.  A lot of strong women and men along with their families.  I met most of them at the funeral and they are awesome people. I loved seeing photos of my sister’s family, which included photos of most of the family.  They brought tears to my eyes. They were good.

I believe that all families have bad in their midst.  I don’t think we can get around that.  We deal with our bad and try to move on with our lives.  One of the sisters that was a true sister of the second family did not come to the funeral.  I don’t know why. It’s part of our bad.

Then there’s the ugly.  I hope that most families don’t have the ugly parts, but I’d be surprised if most families, if not all families have ugly parts…pedofiles, alcoholics, drug addicts, abusive parents, negligent parents and the list goes on and on. That’s what causes the huge fractures in families and the dysfunction and “in a room with a huge  elephant sitting in the middle and no one talking about it” Our family talks about it, but, not everyone is onboard, or denies these things have happened or the ugly tries to intimidate the good.  Those that talk about it have their own way to deal with it.  We’re all different in our approach to ugliness.  I’ve dealt with it, worked on it and still, going back to the funeral, seeing the ugliness, took me right back to childhood.

The Good is in my family and the Good is winning right now.  The Good is taking care of their own immediate family to hope they can keep ugliness out of their family.  It doesn’t always work, but we’re trying to make a change in the dynamics of our families.

I know this makes little sense to a lot of people reading this, but, I had to get this out of my head, so I can sleep and I can continue. I’ll get to his latest escapades tomorrow.

Day + 31 + Need Time to Process

I cannot get my head around all that has happened and all that is to come.  I have to give myself some time to get my head on straight again…well it was never really straight.  I have Zippy’s stuff, I have Jen’s stuff that seems to be coming to a panic attack mode for us, I have the funeral from yesterday, I have all the weight I gained, I have cars breaking, houses needing repairs, things I want to do, things I can’t do…so I’m taking a brain holiday.  I’ll be back in a couple days to impart “The Good, the Bad and the Ugly” It really has been a journey in the middle of our escapades.

Day + 29 + Home

Thursday morning we went to  IPOP at 10 AM, but Zip didn’t have to get labs since his veins are pretty hard to tap into them.  So we went in and the Discharge Nurse took us for our class, for what to do when we do get home.  We were already scheduled for IPOP on Friday morning, hoping they wouldn’t keep us until Monday.  I shared my info about my sister when we got back from our class.  Nurse Greg went in search of our greatly loved NP Laura.  When she came in, she started asking pointed questions about his well being, you know fevers, fatigue, stomach issues, leg swelling, etc. So, she said, I think you can go home now.  And we both said, tomorrow, now?  She said today, now. We all cried (NP, nurses, techs, too) over our leaving, relief, happiness and missing all the wonderful health care people that we’ve met over the last 37 days. We’re not out of the woods yet.  We have to go back this coming Wed to see Dr Borello and then not sure how often, until he releases us to Dr Ngaiza here.

We were out at the elevators, when some of the nurses came out ringing a bell and carried a certificate of finishing our IPOP visits.  More tears.  They are the best of the best!

I did not post this information, since Zippy is still not up to par.  He cannot have people visiting him here at the house right now.  He can go out and can intermingle sort of… He has to be careful not to be in crowded rooms, without being able to stay away from crowded people.  As much as he would love to see his friends, and I’m sure you would like to see him, I’m asking all to give us some room and don’t come to visit. This was a really big deal and not to be taken lightly.  Zip has 3 months to keep a low profile, although the discharge class told him he could golf, but had, had to wear a mask.  He has no immune system right now…none…his immune system is like a newborn baby.  So, if you think you have allergies, a cold, a sinus infection, flu, stomach issues, diarrhea, whatever sickness for the next 12 months, stay away from Zippy or let me know and I’ll keep him home. I can’t remember when he gets his first immunization shots, but he won’t have them all until 12 months.

This all being said, I am so glad the Zip and I are home!  Our journey is not over.  Our escapades are only beginning, so keep reading.  They can only get better, hopefully from here on out.

Here’s to Zippy being upright and walking, hoping his stomach issues will subside.  Hope you all get to see him in the next week or so.  No hugs, no kisses, no passing of the peace.

Wahoo, we’re home!

Day + 28 + Stuff

Got a phone call from my niece yesterday morning.  My sister, Martha died around 12:00 AM, on her wedding anniversary.  She was, I think, 88.  She was diagnosed with pancreatic cancer, about the same time Zip had his fall on the golf course back in April. I never got a chance to visit with her.  Martha is my sister that was deaf.  She did everything with gusto and panache.  She was beautiful (but, all my sisters are beautiful) She went to Galludet College way back in the day.  She met her husband, and this is one of the coolest things, in Ocean City, way back in the day.  He was a life guard! They were a beautiful couple.  My parents and their family, and other family members use to go on vacations together…downey ocen, down to Florida.  I was one of the babysitters for Holly and Heather.  When Heidi came along, my niece Debbie took over babysitting.  Martha had a great life and great daughters.  Those daughters have taken good care of Martha before and after Glen died several years ago. Oh yeah, and she ran in many a race, even in the senior Olympics  and she ran those races into her 80’s.

Change of subject…I was in my car, when I heard my phone chirping that I had a text message.  I couldn’t open it and when I did, I was so jealous!  This is what I got yesterday…

Zippity Do Dah is upright and walking and only needs to take care of his stomach issues.